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Posts

• Category: Recommended Products
  • Orthotics for Intractable Epilepsy
• Category: Sample Resource Request Letters
  • Adaptive Stroller Request Template Letter
  • Canadian Dravet Syndrome Template Letter
  • Educational Placement Template Letter
  • FAPE Pre-school Letter Template
  • Orphan Drug Request Template Letter
  • Request for Nursing Services
• Category: Science & Genetics
  • Can Transplanted Neuronal Progenitor Cells Develop into Functioning Neurons
  • Case Study: Dravet Syndrome 20 yr. old patient
  • Child Neurology: Dravet Syndrome
  • Dravet syndrome Case Study
  • Dravet syndrome Represented at NIH/NINDS meeting
  • Participate in a Dravet syndrome Genetic Study
• Category: Stiripentol
  • Obtaining Stiripentol in the United States
• Category: US Drug Approval
  • FDA Approves ONFI™ (clobazam)
  • Orphan Drug Act of 1983 & Rare Diseases
  • US Drug Approval Process
• Category: Valparin

Pages

• $50,000 Grant to Look For Predictive Gene(s) and New Epilepsy Causes in the Ion Channel
• 2 Studies Show Lamotrigine Possible Risk Factor for SUDEP
• About ICE
• Board of Directors
• Board of Directors
• Contact Us
• Depakote (Divalproex Sodium)
• Dilantin (Phenytoin)
• Dravet Syndrome Won Compassionate Allowance Recognition
• Epilepsy Research & Clinical Trials
• Grants
• ICE 20/20 Fundraiser
• ICE and DSF Fund the International Ion Channel Epilepsy Patient Registry
• Ice Epilepsy Alliance
• Identifying Seizures
• IS Awareness Week
• Lamictal (Lamotrigine)
• Michelle Welborn, PharmD
• Mysoline (Primidone)
• News
• Orphan Drugs
• Patient Registry
• Peter Haeberli, JD
• Sitemap
• Tegretol (Carbamazepine)
• The Dravet Syndrome Spectrum
• Topamax (Topiramate)