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Home > News > Media > As Heard On NPR

As Heard On NPR

Harriet Davies founded the ICE Epilepsy Alliance after her daughter was diagnosed with Ion Channel Epilepsy. In this interview on Voices and Viewpoints Michelle, talks about the goals she maintains for the ICE Epilepsy Alliance, the process of getting her daughter’s condition diagnosed, and the affect it has had on their family of four.

See also  ICE Hosts Event at CNS Oct. 26

Category: Media

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Clinical Trials

    • [+] Click for list of clinical trials in Childhood Epilepsy taking place outside the United States.
      • Combined Role of PET and MEG in Non-Lesional Epilepsy
      • Combined Role of PET and MEG in Non-Lesional Epilepsy
      • Efficacy and Safety of Adjunctive Zonisamide in Paediatric Partial Onset Seizures (CATZ Study)
      • Eslicarbazepine Acetate (BIA 2 093) as Therapy for Refractory Partial Seizures in Children
      • Exploration of Genotype Based Personalized Prescription for Valproate
      • Genetic Basis of Idiopathic Focal Epilepsies with Cognitive Deficits (France - not yet recruiting)
      • Lamotrigine vs Levitiracetam as Initial Monotherapy in Epilepsy
      • Levitiracetam in children with partial epilepsy
      • Modified Atkins Diet in Children with Epilepsy
      • National Organization for Rare Diseases
      • Scholar Performance and Praxis Assessment in Children With Rolandic Epilepsy
      • Transcranial Direct Current Stimulation (tDCS) As A Tool For Prospective Responder Identification Before Vagus Nerve Stimulation (VNS) Implantation
      • Transcranial Magnetic Stimulation and Anti-Epileptic Effect
      • Trial of Melatonin to Improve Sleep in Children with Epilepsy and Neurodevelopmental Disabilities
    • [+] Click here for a list of current and upcoming clinical trials for Childhood Epilepsy in the United States.
      • A Study on the Effectiveness and Safety of Diazepam Injection (Vanquix™) for Patients With Epilepsy
      • Athena Diagnostics
      • Charlie Foundation
      • Citizens United to Research Epilepsy
      • Coping Skills Training for Children with Chronic Health Conditions
      • Dravet Syndrome Foundation
      • Epilepsy Therapy Project
      • Evaluation and Treatments of Patients with Epilepsy
      • Evaluation of Functional MRI and DTI (Imaging Techniques) in Children With Epilepsy and Focal Brain Lesions
      • Everolimus (RAD001) Therapy for Epilepsy in Patients With Tuberous Sclerosis Complex (TSC)
      • Genetics of Rolandic Epilepsy
      • Human Epilepsy Genetics-Neuronal Migrations Disorder Study
      • Language Mapping in Patients with Epilepsy
      • Long term study to assess Safety and Efficacy of Oxcarbazepine Extended Release in Children
      • Matthew's Friends
      • Muir Maxwell Trust
      • Open label Pharmacokinetic study of Brivaracetam in Children with Epilepsy
      • Open label to Assess safety of Lacosamide Therapy as Add On for GTC seizures
      • P-Glycoprotein Inhibition as Adjunct Therapy for Patients with Medically Refractory Epilepsy
      • Pilot study of melatoning and Refractory Epilepsy
      • RE Children's Project
      • Remote Tracking for Epilepsy Patients
      • Safety and Tolerability of Pregabalin in Pediatrics with Partial Onset Seizures
      • Search for Genes Influencing Childhood Absence Epilepsy
      • Study to Evaluate the Pharmacokinetics, Safety and Tolerability of Oxcarbazepine Extended Release in Children with Refractory Partial Epilepsy
      • The Epilepsy Phenome Genome Project
      • The Safety of Intravenous Lacosamide
      • Tubular Sclerosis Alliance

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