Category: Media

ICE Hosts Event at CNS Oct. 26

ICE Epilepsy Alliance is hosting a group dinner discussion at the CNS Annual Meeting Titled “Investigational Drugs for Intractable Epilepsy”.  First twenty five physcians to RSVP at will be admitted.

The dinner will be held on Wednesday, October 26, at the world famous Lady & Son’s Restaurant in downtown Savannah, owned by celebrity chef Paula Deen.

SPIND Pharma, the sponsor of this dinner, facilitates access to investigational drugs for patients with intractable childhood epilepsy and other serious medical conditions in which FDA approved therapies have failed.


 Epilepsy Group Founder Harriet Davies to Participate in Sudden Unexpected Death in Epilepsy Adams-Salem, N.C. – Harriet Davies, PharmD, founder of the Intractable Childhood Epilepsy (ICE) Epilepsy Alliance, is one of 30 epilepsy advocates and researchers who will take part in an open forum discussion in Washington, D.C., on Oct. 13, about the causes of […]

American Epilepsy Annual Meeting 2010

The American Epilepsy Society’s Annual Meeting is the premiere meeting for epilepsy and other seizure disorders. The Annual Meeting is an international forum for the exchange of current findings in epilepsy research. Information is communicated and disseminated through symposia, lectures, scientific exhibitions, poster and platform presentations. The Annual Meeting attracts attendees from all over the world and […]

Dravet Syndrome Research Opportunity

This is an opportunity to help with Dravet Syndrome research.  It is an optional survey.  This is generated by an organization independent from ICE Epilepsy Alliance. If you are interested please click on the link below to fill out the online survey.  Completion takes about three to five minutes.  Please complete as soon as possible but by Friday April 27th.

As Heard On NPR

Harriet Davies founded the ICE Epilepsy Alliance after her daughter was diagnosed with Ion Channel Epilepsy. In this interview on Voices and Viewpoints Michelle, talks about the goals she maintains for the ICE Epilepsy Alliance, the process of getting her daughter’s condition diagnosed, and the affect it has had on their family of four.

ICE Alliance Exhibits in Child Neurology Society Annual Meeting

Contact: For Release On: Christina Johansen October 12, 2010 (336) 245-6503 ICE Epilepsy Alliance to Exhibit at the 2010 Child Neurology Society Annual Meeting in Rhode Island Contact:                                                                                  For Release On: Elliot Bruce                                                                            October 12, 2010 (336) 214-7789 Winston-Salem, N.C. – The Intractable Childhood Epilepsy (ICE) […]

Vision 20/20 Task Force

ICE Epilepsy Alliance is a member of the American Epilepsy Society’s Vision 20/20 Task Force, a group of advocacy groups committed to improve the lives of patients with epilepsy. At the request of the Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation, the National Institutes of Health, and […]

Fundraiser at Bowman Gray Stadium

Winston-Salem, NC – A successful fundraising event was held at Bowman Gray Stadium this weekend.  A special thanks goes out to The Law Offices of Timothy D. Davies, participating ICE Epilepsy volunteers and sponsored driver Jasmine Hargreaves.  Congratulations also goes out to Ryan for his win on Friday night, which resulted in a special $500 donation from […]

Encore Discussion about Dravet Syndrome

Voices & Viewpoints Discusses Dravet Syndrome
Picking up from where they left off in their last radio discussion Harriet Davies and Isaac Winter discuss Dravet Syndrome.  A severe form of epilepsy that typically manifests after the first six months of life and before the child’s first birthday.  This disease is considered a rare disease, and while we are learning more every day about epilepsy there is still so much more to learn.