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	<title>Ice Epilepsy Alliance</title>
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	<link>http://www.ice-epilepsy.org</link>
	<description>Intractable Childhood Epilepsy</description>
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		<title>Autoinjectors offer way to treat prolonged seizures</title>
		<link>http://www.ice-epilepsy.org/autoinjectors-offer-way-to-treat-prolonged-seizures.html</link>
		<comments>http://www.ice-epilepsy.org/autoinjectors-offer-way-to-treat-prolonged-seizures.html#comments</comments>
		<pubDate>Tue, 08 May 2012 15:19:42 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Drug Info & Treatments]]></category>
		<category><![CDATA[Drug Information]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2025</guid>
		<description><![CDATA[Drug delivery into muscle using an autoinjector, akin to the EpiPen used to treat serious allergic reactions, is faster and may be a more effective way to stop status epilepticus, a prolonged seizure lasting longer than five minutes, according to a study sponsored by the National Institutes of Health.]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Dravet Syndrome Research Opportunity</title>
		<link>http://www.ice-epilepsy.org/dravet-syndrome-research-opportunity.html</link>
		<comments>http://www.ice-epilepsy.org/dravet-syndrome-research-opportunity.html#comments</comments>
		<pubDate>Mon, 23 Apr 2012 21:17:57 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2013</guid>
		<description><![CDATA[This is an opportunity to help with Dravet Syndrome research.  It is an optional survey.  This is generated by an organization independent from ICE Epilepsy Alliance. If you are interested please click on the link below to fill out the online survey.  Completion takes about three to five minutes.  Please complete as soon as possible but by Friday April 27th.

http://www.surveybuilder.com/s/JqbXWH85wAA ]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>PAME Conference</title>
		<link>http://www.ice-epilepsy.org/pame-conference.html</link>
		<comments>http://www.ice-epilepsy.org/pame-conference.html#comments</comments>
		<pubDate>Tue, 21 Feb 2012 20:44:41 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Childhood Epilepsy]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1995</guid>
		<description><![CDATA[This 3-day learning event is the first Partners Against Mortality in Epilepsy (PAME) conference devoted predominantly to Sudden Unexpected Death In Epilepsy (SUDEP), where clinical, basic science and patient/family attendees will come together to understand and support each other.]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/pame-conference.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>FDA Approves ONFI™ (clobazam)</title>
		<link>http://www.ice-epilepsy.org/fda-approves-onfi%e2%84%a2-clobazam.html</link>
		<comments>http://www.ice-epilepsy.org/fda-approves-onfi%e2%84%a2-clobazam.html#comments</comments>
		<pubDate>Wed, 02 Nov 2011 16:46:49 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Drug Info & Treatments]]></category>
		<category><![CDATA[Drug Information]]></category>
		<category><![CDATA[Progress & Prognosis]]></category>
		<category><![CDATA[US Drug Approval]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1973</guid>
		<description><![CDATA[“As an epileptologist treating patients with a variety of challenging seizure disorders, I’m aware of the need for new add-on therapies to address the severe and frequent seizures associated with LGS,” said Joan A. Conry, MD, professor of neurology at Children’s National Medical Center in Washington, D.C., and a principal investigator of the CONTAIN Trial. “Clobazam, now approved as ONFI, was shown to be effective as adjunctive therapy for reducing seizures associated with LGS,1 and its upcoming availability provides hope for additional seizure management to patients and their physicians, caregivers and families.”]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/fda-approves-onfi%e2%84%a2-clobazam.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>ICE Hosts Event at CNS Oct. 26</title>
		<link>http://www.ice-epilepsy.org/ice-hosts-spind-sponsored-meeting-in-ga.html</link>
		<comments>http://www.ice-epilepsy.org/ice-hosts-spind-sponsored-meeting-in-ga.html#comments</comments>
		<pubDate>Wed, 19 Oct 2011 17:08:50 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1940</guid>
		<description><![CDATA[ICE Epilepsy Alliance is hosting an invite only group dinner discussion at the CNS Annual Meeting Titled "Investigational Drugs for Intractable Epilepsy".]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/ice-hosts-spind-sponsored-meeting-in-ga.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<item>
		<title>Aspiring Celebrity Spokesperson for Epilepsy</title>
		<link>http://www.ice-epilepsy.org/aspiring-celebrity-spokesperson-for-epilepsy.html</link>
		<comments>http://www.ice-epilepsy.org/aspiring-celebrity-spokesperson-for-epilepsy.html#comments</comments>
		<pubDate>Wed, 19 Oct 2011 16:20:22 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1923</guid>
		<description><![CDATA[ICE Founder Michelle Welborn's daughter, Logan Welborn, age 11, sings at Child Neurology Foundation and CURE Epilepsy Galas in 2011]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/aspiring-celebrity-spokesperson-for-epilepsy.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Fundraiser at Bowman Gray Stadium</title>
		<link>http://www.ice-epilepsy.org/fundraiser-at-bowman-gray-stadium.html</link>
		<comments>http://www.ice-epilepsy.org/fundraiser-at-bowman-gray-stadium.html#comments</comments>
		<pubDate>Tue, 31 May 2011 15:22:33 +0000</pubDate>
		<dc:creator>Michelle.Welborn</dc:creator>
				<category><![CDATA[Fundraiser Info]]></category>
		<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1885</guid>
		<description><![CDATA[Winston-Salem, NC – The Law Offices of Timothy D. Welborn and ICE Epilepsy Alliance will team up this Friday night, June 3, for a fundraising event at Bowman Gray Stadium in Winston-Salem to generate funds for two seizure alert dogs to be awarded to children in need in 2012.]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/fundraiser-at-bowman-gray-stadium.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Autism and MMR Vaccine Study an &#8216;Elaborate Fraud,&#8217; Charges BMJ</title>
		<link>http://www.ice-epilepsy.org/autism-and-mmr-vaccine-study-an-elaborate-fraud-charges-bmj.html</link>
		<comments>http://www.ice-epilepsy.org/autism-and-mmr-vaccine-study-an-elaborate-fraud-charges-bmj.html#comments</comments>
		<pubDate>Thu, 06 Jan 2011 17:00:18 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Drug Info & Treatments]]></category>
		<category><![CDATA[Drug Information]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1864</guid>
		<description><![CDATA[January 6, 2011 — BMJ is publishing a series of 3 articles and editorials charging that the study published in The Lancet in 1998 by Andrew Wakefield and colleagues linking the childhood measles-mumps-rubella (MMR) vaccine to a "new syndrome" of regressive autism and bowel disease was not just bad science but "an elaborate fraud."

According to the first article published in BMJ today by London-based investigative reporter Brian Deer, the study's investigators altered and falsified medical records and facts, misrepresented information to families, and treated the 12 children involved unethically.]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/autism-and-mmr-vaccine-study-an-elaborate-fraud-charges-bmj.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>2 Studies Show Lamotrigine Possible Risk Factor for SUDEP</title>
		<link>http://www.ice-epilepsy.org/2-studies-show-lamotrigine-possible-risk-factor-for-sudep.html</link>
		<comments>http://www.ice-epilepsy.org/2-studies-show-lamotrigine-possible-risk-factor-for-sudep.html#comments</comments>
		<pubDate>Thu, 06 Jan 2011 16:33:20 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Drug Info & Treatments]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1859</guid>
		<description><![CDATA[December 22, 2010 (San Antonio, Texas) — Two new studies have found an association between the antiepileptic drug (AED) lamotrigine and increased risk for sudden unexplained death in epilepsy (SUDEP).
One study, a pooled analysis of previous case-control studies, showed lamotrigine therapy was associated with SUDEP. This analysis also uncovered additional risk factors that have not been previously reported, including female sex and learning disability.]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/2-studies-show-lamotrigine-possible-risk-factor-for-sudep.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Participate in a Dravet syndrome Genetic Study</title>
		<link>http://www.ice-epilepsy.org/participate-in-a-dravet-syndrome-genetic-study.html</link>
		<comments>http://www.ice-epilepsy.org/participate-in-a-dravet-syndrome-genetic-study.html#comments</comments>
		<pubDate>Thu, 06 Jan 2011 13:56:14 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Dravet Syndrome]]></category>
		<category><![CDATA[Drug Info & Treatments]]></category>
		<category><![CDATA[Drug Information]]></category>
		<category><![CDATA[featured]]></category>
		<category><![CDATA[Progress & Prognosis]]></category>
		<category><![CDATA[Science & Genetics]]></category>
		<category><![CDATA[Childhood Neurological Disorders]]></category>
		<category><![CDATA[Dravet syndrome]]></category>
		<category><![CDATA[Dravet syndrome diagnosis]]></category>
		<category><![CDATA[Dravet syndrome genetic testing]]></category>
		<category><![CDATA[Dravet syndrome study]]></category>
		<category><![CDATA[Gleeson Neurogenetics Laboratory]]></category>
		<category><![CDATA[Joseph Gleeson]]></category>
		<category><![CDATA[Kiley Hill]]></category>
		<category><![CDATA[MD]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1694</guid>
		<description><![CDATA[The Genetic Investigation of Child Neurological Disorders Joseph Gleeson, M.D. And his team at UCSD seek to identify new causes of Dravet syndrome Who Can Help? Families with: prefer at least 2 members with epilepsy and at least one with Dravet syndrome (Also accepting Dravet participants without a family history of seizures) Dravet syndrome as [...]]]></description>
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		<slash:comments>0</slash:comments>
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