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	<title>Ice Epilepsy Alliance</title>
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	<link>http://www.ice-epilepsy.org</link>
	<description>Intractable Childhood Epilepsy</description>
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		<title>Collaboration &amp; Advocacy for families living with Rare Chromosome Disorder</title>
		<link>http://www.ice-epilepsy.org/collaboration-and-advocacy-for-families-living-with-rare-chromosome-disorder.html</link>
		<comments>http://www.ice-epilepsy.org/collaboration-and-advocacy-for-families-living-with-rare-chromosome-disorder.html#comments</comments>
		<pubDate>Thu, 28 Feb 2013 11:00:01 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Childhood Epilepsy]]></category>
		<category><![CDATA[featured]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2092</guid>
		<description><![CDATA[IDIC15 Canada is a New Canadian non-profit organization which provides Collaboration, Advocacy and Research to families living with Idic15 and it’s variants otherwise known as Chromosome 15q11-13 Duplication Syndrome. This organization is born from the need to advance medical resources and awareness in Canada.]]></description>
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		<title>Ayanna&#8217;s Song</title>
		<link>http://www.ice-epilepsy.org/ayannas-song.html</link>
		<comments>http://www.ice-epilepsy.org/ayannas-song.html#comments</comments>
		<pubDate>Wed, 27 Feb 2013 13:28:54 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2088</guid>
		<description><![CDATA[I wanted to share with you a song I wrote and recorded for a 4-year-old little girl named Ayanna, who has Dravet Syndrome.]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Dravet Syndrome Won Compassionate Allowance Recognition</title>
		<link>http://www.ice-epilepsy.org/dravet-syndrome-won-compassionate-allowance-recognition.html</link>
		<comments>http://www.ice-epilepsy.org/dravet-syndrome-won-compassionate-allowance-recognition.html#comments</comments>
		<pubDate>Thu, 06 Dec 2012 17:04:49 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[Dravet Syndrome]]></category>
		<category><![CDATA[Compassionate Allowance]]></category>
		<category><![CDATA[Dravet]]></category>
		<category><![CDATA[Social Security]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2068</guid>
		<description><![CDATA[Commissioner Astrue held an event at the Hart Senate Building at 10:00 a.m in Washington, DC to commemorate the milestone of reaching 200 Compassionate Allowances conditions.  The newest of these conditions is a rare disease called Dravet Syndrome.  ICE Alliance was a key participant in the presentations at the public hearings to win this recognition for Dravet Syndrome.]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Autoinjectors offer way to treat prolonged seizures</title>
		<link>http://www.ice-epilepsy.org/autoinjectors-offer-way-to-treat-prolonged-seizures.html</link>
		<comments>http://www.ice-epilepsy.org/autoinjectors-offer-way-to-treat-prolonged-seizures.html#comments</comments>
		<pubDate>Tue, 08 May 2012 15:19:42 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Drug Info & Treatments]]></category>
		<category><![CDATA[Drug Information]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2025</guid>
		<description><![CDATA[Drug delivery into muscle using an autoinjector, akin to the EpiPen used to treat serious allergic reactions, is faster and may be a more effective way to stop status epilepticus, a prolonged seizure lasting longer than five minutes, according to a study sponsored by the National Institutes of Health.]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Dravet Syndrome Research Opportunity</title>
		<link>http://www.ice-epilepsy.org/dravet-syndrome-research-opportunity.html</link>
		<comments>http://www.ice-epilepsy.org/dravet-syndrome-research-opportunity.html#comments</comments>
		<pubDate>Mon, 23 Apr 2012 21:17:57 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=2013</guid>
		<description><![CDATA[This is an opportunity to help with Dravet Syndrome research.  It is an optional survey.  This is generated by an organization independent from ICE Epilepsy Alliance. If you are interested please click on the link below to fill out the online survey.  Completion takes about three to five minutes.  Please complete as soon as possible but by Friday April 27th.

http://www.surveybuilder.com/s/JqbXWH85wAA ]]></description>
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		<slash:comments>0</slash:comments>
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		<title>PAME Conference</title>
		<link>http://www.ice-epilepsy.org/pame-conference.html</link>
		<comments>http://www.ice-epilepsy.org/pame-conference.html#comments</comments>
		<pubDate>Tue, 21 Feb 2012 20:44:41 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Childhood Epilepsy]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1995</guid>
		<description><![CDATA[This 3-day learning event is the first Partners Against Mortality in Epilepsy (PAME) conference devoted predominantly to Sudden Unexpected Death In Epilepsy (SUDEP), where clinical, basic science and patient/family attendees will come together to understand and support each other.]]></description>
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		<slash:comments>0</slash:comments>
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		<title>FDA Approves ONFI™ (clobazam)</title>
		<link>http://www.ice-epilepsy.org/fda-approves-onfi%e2%84%a2-clobazam.html</link>
		<comments>http://www.ice-epilepsy.org/fda-approves-onfi%e2%84%a2-clobazam.html#comments</comments>
		<pubDate>Wed, 02 Nov 2011 16:46:49 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Drug Info & Treatments]]></category>
		<category><![CDATA[Drug Information]]></category>
		<category><![CDATA[Progress & Prognosis]]></category>
		<category><![CDATA[US Drug Approval]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1973</guid>
		<description><![CDATA[“As an epileptologist treating patients with a variety of challenging seizure disorders, I’m aware of the need for new add-on therapies to address the severe and frequent seizures associated with LGS,” said Joan A. Conry, MD, professor of neurology at Children’s National Medical Center in Washington, D.C., and a principal investigator of the CONTAIN Trial. “Clobazam, now approved as ONFI, was shown to be effective as adjunctive therapy for reducing seizures associated with LGS,1 and its upcoming availability provides hope for additional seizure management to patients and their physicians, caregivers and families.”]]></description>
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		<slash:comments>0</slash:comments>
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		<title>ICE Hosts Event at CNS Oct. 26</title>
		<link>http://www.ice-epilepsy.org/ice-hosts-spind-sponsored-meeting-in-ga.html</link>
		<comments>http://www.ice-epilepsy.org/ice-hosts-spind-sponsored-meeting-in-ga.html#comments</comments>
		<pubDate>Wed, 19 Oct 2011 17:08:50 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1940</guid>
		<description><![CDATA[ICE Epilepsy Alliance is hosting an invite only group dinner discussion at the CNS Annual Meeting Titled "Investigational Drugs for Intractable Epilepsy".]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Aspiring Celebrity Spokesperson for Epilepsy</title>
		<link>http://www.ice-epilepsy.org/aspiring-celebrity-spokesperson-for-epilepsy.html</link>
		<comments>http://www.ice-epilepsy.org/aspiring-celebrity-spokesperson-for-epilepsy.html#comments</comments>
		<pubDate>Wed, 19 Oct 2011 16:20:22 +0000</pubDate>
		<dc:creator>Christina.Johansen</dc:creator>
				<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1923</guid>
		<description><![CDATA[ICE Founder Michelle Welborn's daughter, Logan Welborn, age 11, sings at Child Neurology Foundation and CURE Epilepsy Galas in 2011]]></description>
		<wfw:commentRss>http://www.ice-epilepsy.org/aspiring-celebrity-spokesperson-for-epilepsy.html/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Fundraiser at Bowman Gray Stadium</title>
		<link>http://www.ice-epilepsy.org/fundraiser-at-bowman-gray-stadium.html</link>
		<comments>http://www.ice-epilepsy.org/fundraiser-at-bowman-gray-stadium.html#comments</comments>
		<pubDate>Tue, 31 May 2011 15:22:33 +0000</pubDate>
		<dc:creator>Michelle.Welborn</dc:creator>
				<category><![CDATA[Fundraiser Info]]></category>
		<category><![CDATA[Media]]></category>

		<guid isPermaLink="false">http://www.ice-epilepsy.org/?p=1885</guid>
		<description><![CDATA[Winston-Salem, NC – The Law Offices of Timothy D. Welborn and ICE Epilepsy Alliance will team up this Friday night, June 3, for a fundraising event at Bowman Gray Stadium in Winston-Salem to generate funds for two seizure alert dogs to be awarded to children in need in 2012.]]></description>
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		<slash:comments>0</slash:comments>
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