Obtaining Stiripentol in the United States

Obtaining Stiripentol in the United States

Stiripentol is not an FDA approved drug. For the last several years, US citizens have been able to obtain stiripentol by ordering directly from Biocodex, France OR by ordering through Caligor Pharmacy, NY via the FDA's Personal Importation Policy (PIP):

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Tomorrow Isn’t Soon Enough

Tomorrow Isn’t Soon Enough

This page hosts a link to download a power point file that uses illustrations, graphs, and charts to convey a collection of gathered information on Dravet syndrome from the science end of the causes, to the information that is available on current cases of the disease, prognosis and even some drug information.

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Stiripentol and Anesthesia

Most anesthetics are metabolized in the liver and will interact with stiripentol, and to what extent is unknown, making it impossible for a recommendation to decrease stiripentol dose or decrease anesthetic dose.

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Stiripentol Use in Children with Ds

Stiripentol Use in Children with Ds

Stiripentol Use in Children with Dravet Syndrome Data Source: Dravet Syndrome Patient Registry July 2008 Number of completed surveys: 22 Number of children using stiripentol: 8 Michelle Welborn, PharmD September 2008 This research was generated by the preliminary Dravet syndrome patient registry launched in 2008 and was submitted to be used for application of Orphan Drug Designation for stiripentol in the United States. Stiripentol was granted Orphan Drug Designation in November 2008. Current age of child: Race: How long has your child been...

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