Request for Nursing Services

Request for Nursing Services

To all ICE advocates:  This letter was written by a parent of a child with Dravet syndrome who appealed to the Ohio state Medicaid department for nursing services to care for her child.  Each state has a different policy and plan for developmentally disabled children and their care, dependent on level of need.  Please look for additional articles and letters on pursuing care for children with ICE, and where to look. State: OH Waiver name: Level One Description: This waiver allows MR/DD persons of all ages who meet the ICF/MR level of...

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FAPE Pre-school Letter Template

FAPE Pre-school Letter Template

At times, as a parent advocate for a child with intractable epilepsy, we must become warriors.  Your school age child is entitled to a Free and Appropriate Education (FAPE) beginning at age 3 years old in most states. Below is an example of a letter written to advocate for a child to be placed in a private pre-school. Administrator Public School Pre-School Intake Special Education Program Hometown, USA November 1, 2009 Dear _______________: I hope you had a good couple of days off for fall break.  I’m writing to request an IEP meeting...

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Orphan Drug Request Template Letter

Orphan Drug Request Template Letter

Dear Parent: This is the template I have given to many parents who have advocated for payment of stiripentol, clobazam or Epistatus by private insurance or Medicaid. My first job out of residency was as Clinical Formulary Manager for a Health Maintenance Organization (HMO).  In this role, I decided if exceptions should be made for drugs not covered by the insurance plan. This template should reflect your child’s disease course and may serve as a guide for your letter or appeal for prescription coverage.  The letter wordy, but  I...

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Canadian Dravet Syndrome Template Letter

Canadian Dravet Syndrome Template Letter

This article is on behalf of Canadian families who are seeking payment of Dravet syndrome therapies. This letter was distributed to the National Health Plan on the patient's behalf.

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Adaptive Stroller Request Template Letter

Adaptive Stroller Request Template Letter

This template letter for an adaptive stroller and adaptive car seat for your child may be useful if you are pursuing payment of these items by your insurance carrier.

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Educational Placement Template Letter

Educational Placement Template Letter

This template letter may be useful in obtaining the educational placement or services you need for your child. Child Neurologist Address October 1, 2007 Preschool Coordinator Public School System Dear Ms. XXXXXX I am a pediatric epileptologist and care for __________.  I am writing to you concerning  _________  preschool placement within the ____________ County public schools.  _________ qualifies for special needs services through the qualifier  “Other Health Impaired” in that she has a chronic health problem which limits her...

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