Early Intervention Services
A listing of websites arranged by state that provide early intervention services within the United States. It is important to start early intervention services and have regular developmental development checkups when epilepsy.
read moreSupport for Sibblings
In general, most children in families that include a child with a disability are likely to adapt and even blossom when their developmental needs are met in the family.
read moreProtective Helmets
Your child’s neurologist, physical therapist, or teacher may recommend a protective helmet to prevent head injuries during falls from seizures. The helmets are most often ordered through physical therapy departments and custom made for the child’s head. A couple of websites for protective...
read moreOrthotics for Intractable Epilepsy
Although orthotics are mentioned in many books available to families and professionals, there are few magazine articles or newspaper stories that mention these commonly used shoe inserts that do make a difference to children with epilepsy that also have low muscle tone or an abnormal gait or teens who have pain or discomfort due to walking differently during early childhood and beyond.
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Dravet syndrome Represented at NIH/NINDS meeting
NINDS, August 26-27, 2010 Michelle Welborn, PharmD Intractable Childhood Epilepsy Alliance (ICE) Mission: The mission of ICE is to advance identification, understanding, and cure for ion channel and other genetic epilepsies through a strategic alignment of advocacy groups, industry, government, academia, parents, and investors internationally. ICE holds Dravet syndrome as the highest priority for disease modification and cure. Perspective on Anti-epileptogenesis (AEG): Despite the growing number of causes of epilepsy, 70% of cases are deemed...
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