Collaboration & Advocacy for families living with Rare Chromosome Disorder

Collaboration & Advocacy for families living with Rare Chromosome Disorder

IDIC15 Canada is a New Canadian non-profit organization which provides Collaboration, Advocacy and Research to families living with Idic15 and it’s variants otherwise known as Chromosome 15q11-13 Duplication Syndrome. This organization is born from the need to advance medical resources and awareness in Canada.

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Ayanna’s Song

Ayanna’s Song

I wanted to share with you a song I wrote and recorded for a 4-year-old little girl named Ayanna, who has Dravet Syndrome.

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