Emergency Administration of Rescue Medications

Emergency Administration of Rescue Medications

Purpose: to assist each child at the time of a seizure and when/if rescue medication administration is needed. Objectives: Upon completion of the rescue medication training, the participant(s) will demonstrate and/or verbalize the following competencies: Have a basic understanding of seizures and the different types and characteristics of each How to manage seizures Read medication label and how to correctly follow directions on medication label How to appropriately administer Diastat How to appropriately administer buccal midazolam How to...

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Pharmacology for Epilepsy Patients

Pharmacology for Epilepsy Patients

General Principles of Pharmacology for Epilepsy Patients and Their Caregivers Michelle Welborn, PharmD Your Epilepsy Pharmacist Editor’s Notes by Robert S. Fisher, M.D., Ph.D., Editor-in-Chief of epilepsy.com Edited by Robin Owen, Managing Editor Summary I recently attended a workshop for parents of children with epilepsy designed to gather opinions about the launch of an educational website. During the workshop, the following question was raised to this small group, “What information do you need from health-care providers to better...

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Dravet Testing Facilities

Dravet Testing Facilities

A listing of centers across the world that offer SCN1A testing for Dravet Syndrome.

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Child Neurology: Dravet Syndrome

Child Neurology: Dravet Syndrome

Early development is normal, but signs of regression appear in the second year of life and are often accompanied by convulsive status epilepticus, alternating hemiconvulsions, and myoclonic seizures. Diagnosis can be confirmed bygenetic testing that is now available, and shows mutations within the SCN1A gene. Early recognition and diagnosis of DS and management with appropriate anticonvulsants and treatment plan may reduce the seizure burden and improve long-term developmental outcome

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Request for Nursing Services

Request for Nursing Services

To all ICE advocates:  This letter was written by a parent of a child with Dravet syndrome who appealed to the Ohio state Medicaid department for nursing services to care for her child.  Each state has a different policy and plan for developmentally disabled children and their care, dependent on level of need.  Please look for additional articles and letters on pursuing care for children with ICE, and where to look. State: OH Waiver name: Level One Description: This waiver allows MR/DD persons of all ages who meet the ICF/MR level of...

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